Wednesday, July 6, 2011

Whammy!

I was looking forward to attending my first brain tumor support group tonight, which they hold monthly at UWMC.  I met my seester Amy downtown and we headed there together... only to find an empty conference room and not a single brain tumor patient or supporter around!  We waited for about 10 minutes past the start time, then wandered over to the neurosurgery department.  A flier said today's meeting was a "picnic" but had no information as to where said picnic might be occurring, nobody answered the phone when we called the contact number, and there was no alternate location indicated at the conference room.  Bummer.  Perhaps brain tumor patients love sunny Seattle evenings too much to attend?  I can hardly blame them.

I'm going to email the contact lady and perhaps check out a support group at another Seattle hospital instead for next time.  Sigh.  What an anticlimactic event...

UPDATE ON 7/7/11:  I heard back from the lady that I emailed, and they did in fact have their annual picnic somewhere at the hospital... but we just didn't know where or if it was even happening.  She sent me some informational fliers and it sounds like they have a decent turnout, sometimes with guest speakers, and they break the group out halfway into patients/survivors and family/caregivers.  At least it sounds like more than just me and my sister chatting with each other!  So I'll give them another try.  :)

No comments:

Post a Comment